YES! In remission! However, Dr. CEO and Sunshine inform us that clinical trial protocol is six weeks of consolidation therapy. Thank God we went to the beach and he was able to play a gig trip before all this started again. Plain and simple – it sucks!
After stem cell recovery John was feeling so good, very strong, no neuropathy, a regular constitution, all the signs that point toward a healthy remission, which he is in, then a big ass slap in the face with another six weeks of drugs. Ugh!! He’s irritable, depressed, constipated and has no energy except for the reeling and anxiousness that comes along with the dexamethazone. We just keep thinking six weeks, six weeks, it’s only six weeks…
After consolidation, trial protocol indicates that he be on “maintenance” for 2-5 years. We’re not sure that’s gonna happen. Why on earth would you want to put your body through years of drugs that can, and do cause other cancers, and affect your body in different ways besides having the cancerous plasma cells that could “possibly” rear their ugly heads again?
We remain to be firm believers that food and lifestyle can and will keep John in remission for a very long time. The drugs have certainly helped him get there quickly. But we have not sat by idly and just let the drugs work alone – nope we have taken personal responsibility of our diet and lifestyle and will continue to keep those new habits front and center. Thank you very much!
However, sometimes it is hard to slow the mind down enough to really think about things, and be aware of putting the bad habits away, we know what we want to do but habits can be so hard to change. We continue to seek inspiration and healthy habits for ourselves. We encourage each other and work together to try and stay on course.
We must take a minute to mention a few organizations that have helped us through this journey and continue to play a big part in our lives. Gilda’s Club is an awesome organization that offers many great support options, inspiration and camaraderie. We joined the Multiple Myeloma group there, and even though we were not able to attend the meetings during stem cell transplant, we are getting back into the groove of attending now. We find comfort talking with others who have been through and are going through common challenges. Sometimes we realize just how blessed we really are and how much knowledge we do have about helping the healing process. Hopefully we are able to share our small bit of education enough to help others too. Gilda’s offers a wonderful free library, multitudes of classes, cooking instruction, yoga, mediation and other activities to help families, of all ages and walks of life, deal with cancer and meet new friends. Simply, Gilda’s is a welcoming and comfortable place to be yourself and hang out anytime. We love it!
Through attending meetings and chatting with new friends at Gilda’s, we learned about The Heimerdinger Foundation that prepares and delivers healthy meals to people going through cancer treatment. I fell in love instantly and began volunteering with this group, and cannot say enough good things about them. Honestly, when I talk about The Heimberdinger Foundation and what they do, I get a little choked up – it excites me to work with them, to not only learn more about nutrition and cancer, but to be able to give my time and effort to such an amazing cause. This experience, so far, has endorsed all the changes we have made to our own diet supporting John’s healing. All the meals are made fresh, dairy free, sugar free and gluten free, and of course organic. They have a small farm of their own, but are also supported by several farms around town with fresh organic vegetables. Not only are the meals brimming with the energy of love, they are healthfully healing and DELICIOUS! Please go take a look at this organization and try a recipe, which you can find under the “Resources” tab on the website. You are what you eat, there is no doubt about it, the food you put into your body becomes you – so make you healthy and strong! Get involved if you feel the pull – these folks are fabulous, inspirational and fun!
As I’ve said in previous rants, I can go on and on about healthy food and the circle of life that goes into bringing that food to our tables. I believe that my own ancestors living today remain alive and healthy because they ate REAL food as children and young adults. If I can give one bit of advice it would be to THINK about the food you give children. They are young and growing and deserve a strong, healthy life. For example, if a kid loves hot dogs, learn what that animal ate before it gave it’s life to be a hot dog. As the child eats the hot dog he will also be eating what that animal ate. I’m not sure, but it could be a bad idea to force small organs to process chemical laden meat before those organs are fully developed. Just because foods are FDA approved, does not make them clean, in fact, much of them are pure poison. The state of our nations health is a testament to that. Face it, we are not doing anyone any favors feeding them cheap ass fast food, ice cream, cookies, and hot dogs. Check out the ingredients and see if you can even pronounce them. I know many folks don’t think about it, or care right now about the food kids eat, they just want the child to eat. But if that child develops a disease requiring them to take medication the rest of their lives, odds are it will be because of processed, chemical laden foods. Clean healthy food CAN heal a broken body, but why go through the pain of breaking it to begin with?
I’m always happy to share suggestions and healthy options anytime – the kids, and adults, won’t even notice the difference. Don’t tell him, but my Dad even commented on how delicious my spaghetti sauce was and it didn’t even have meat in it – ha! For example, try kosher hot dogs and anything the “Annie’s” brand makes, most grocery stores stock these items, in fact Kroger stores are really stepping up their game in organics and non-GMO foods. And for heavens sake, whatever you do, DO NOT buy any Round-up pesticide!!
Okay, I’m done. But again, always happy to talk about it and share – anytime!
We are half way through with consolidation therapy and will certainly be glad when the whole mess is done. Will we ever really be done? No – but we will be more educated and conscious and aware. We will love more and we will laugh more and we will live well.
Be good – eat well – take care!